Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
For the most up-to-date NF information, read our latest Newsletter.
Texas Neurofibromatosis Foundation participated in North Texas Giving Day on September 22, 2016. Thanks to your support, we raised over $10,00 in one day! All gifts made to the Texas NF Foundation on September 22 will increase our impact by allowing us to continue patient programing including the annual NF Symposium, local support groups, NF Family Camp and the Clinic Liaisons at Children’s Health Center Dallas and Cook Children’s Hospital. Read more about North Texas Giving Day 2016 here.
UPCOMING EVENTS SEE ALL»
Kendra Scott Gives Back
Join us for food, fun and fabulous Kendra Scott jewelry and accessories. 20% of sales at the event will be donated to the...
Fall NF Patient & Family Gathering
Join us at St. George's Episcopal Church for games, food and to ...